Our Mission:
Advocate. Educate. Empower.
Connecting families and sharing information on research, therapies, and care for Bardet Biedl Syndrome.
BBS Conference 2024!
Join us for our long-awaited international gathering of the BBS community July 26-28, 2024 in Minneapolis, Minnesota.
This is a great opportunity to connect with and learn from other BBS families, hear from leading experts about cutting edge research on BBS, and ask questions of doctors and specialists who have experience treating many people with BBS.
Family Resources
The Bardet Biedl Syndrome Foundation and Family Association is dedicated to improving the lives of individuals and families affected by BBS. Our mission is to provide a community of support for individuals and families; information about BBS; and promote science and research to improve the lives of individuals with Bardet Biedl Syndrome.
Stay Up to Date
Sign up with your email address to receive news and updates on how
to get involved and the latest research.
Our Impact to Support Research & Advocacy.
Great strides have been made toward improving the lives of families affected by Bardet Biedl Syndrome through information, support and by advancing research and therapy in the last decade. The syndrome is accurately and promptly diagnosed much more often; the genetics of the syndrome have been deeply explored; and progress is being made in understanding the molecular basis of symptoms and in possible treatment for retinal degeneration.
12+
$680K+
$425K+
Make a Donation
Donations to the Bardet Biedl Syndrome Foundation will support research into treatment and care for people affected by
BBS as well as education and outreach to families, physicians, and educators.
