Your support matters
Make a Donation
Donations to the Bardet-Biedl Syndrome Foundation will support research into treatment and care for people affected by BBS as well as education and outreach to families, physicians, and educators. Our first major project is the launch of a clinical registry for BBS, a vital foundation for accelerating the pace of BBS research.
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Donations can also be sent to:
The Bardet Biedl Syndrome Foundation
PO Box 663
Unionville, PA 19375
“Private support has allowed the BBS Foundation to fund transformational research in recent years that will hopefully one day lead to life-changing therapies for our children!”
The Bardet Biedl Syndrome Foundation is a registered 501c3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.