To Top

Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Webinar with Rhythm Pharmaceuticals, Thursday, November 29th

The BBS Foundation is hosting a webinar this Thursday night at 8pm Eastern with Rhythm Pharmaceuticals to discuss the Phase II setmelanotide trial for weight loss in BBS patients and plans for the Phase III trial. This is the same presentation that was given at the 2018 Conference with some updated information.

To participate, register at this link:

We are enforcing registration because this is a sensitive subject and we want to make sure we know who is participating and people can ask candid questions.

If you have any problems registering leave a comment here. If you would be interested in participating but cannot at the scheduled time, also leave a comment and we'll see if there is enough interest to schedule additional webinars.