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Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Donate to the BBS Fund

We have launched a BBS Fund to support the new BBS Clinical Registry as well as BBS research and treatment.

Click here to make a donation.

Up to $5000 of donations this weekend will be matched dollar for dollar. If you give $100, $200 will go the BBS Fund. But it’s this weekend only!

Update: We reached our goal! This weekend more than $10,000 was raised for the CRIBBS, the BBS Clinical Registry, and for the BBS Center of Excellence!