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Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Registration for BBSFA Connect 2015 Now Open

Our next conference will be held at the Marshfield Clinic BBS Center of Excellence on September 26th. 

BBSFA Connect 2015 is focused on helping BBS families connect with and learn from each other in addition to having the chance to hear directly from medical professionals who treat BBS patients.

Morning sessions will feature doctors from the BBS Center of Excellence. Afternoon sessions will be co-led by a member of the BBSFA and staff from Marshfield Clinic and focus on discussions between BBS families on the most important issues in daily life. There will be conversations on topics like Transitioning to Adulthood, BBS and the Teen Years, Newly Diagnosed, etc., all chosen by conference attendees. 

We’ll have more details on the agenda soon.

Click here to start the registration process.

We can’t wait to see you!