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Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Registration for the 2014 BBSFA Conference is Now Open!

Click here to register now.

Watch a video invitation to the conference from one of our hosts, Dr. Arlene Drack.

The basic info is below. You can read more about the conference here.

DATE:  June 26 to 28, 2014

LOCATION: University of Iowa, Iowa City, Iowa

Closest airport: Cedar Rapids, Iowa.  

REGISTRATION FEE: $100 for the first adult in a family, $80 for each additional adult who will be attending sessions. $50 for each child under the age of 18.  Tickets just for the banquet are available for $30 per person.

 Registration includes:

  • Attendance at all sessions on Friday and Saturday
  • Lunch on Friday and Saturday
  • The Association banquet on Friday night (nominations for 2014-2016 board positions will take place at the banquet)
  • A family association membership (and one vote in association business matters) is included in the price for the first adult.
  • A BBSFA T-shirt

HOTEL ACCOMMODATIONS:  We have arranged for a group discount at the Heartland Inn in Coralville, IA. It is just a few minutes from the conference venue.  The rates are $75 for two queens; $80 for a king and a pull out couch; $100 for a suite. Additional days before and after the conference are available at the above rate.  Continental breakfast and a light dinner for everyone in your party are included in the above rate. A shuttle will be available to transport guests to the conference venue.

Activities for Children: We will have space at the conference venue set aside for children’s activities. There will be volunteers in these rooms, but this will not be “drop-off” child care. Parents will need to check on their children regularly and volunteer to staff the room during a few sessions.