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Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Tell Us What You Want To Hear About at our 2014 Conference

The 2014 BBS Family Association will cover nearly twice as many topics as we’ve ever been able to before. We’re designing the exact agenda now and want to hear from you. What topics are you most interested in hearing about? Tell us by answering this very brief survey.

The first day of the conference will feature a variety of doctors who are working with BBS patients. The second day will focus on research. For the first day we’re trying to make sure we allot time to cover the issues that are most of concern. This is your chance to help us shape the agenda. So take just a few minutes to fill out the survey please!