Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Register for the 2018 BBS Family Association Conference

June 30-July 1, in Salt Lake City

Early Bird Discount for the first 10 families to register!

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    Salt Lake City

                                   June 30-July 1

In all the years of the BBS Family Association we've never had a gathering west of Houston. This year we wanted to make things a bit easier for our many families in the West. We found a wonderful venue just outside Salt Lake City called Station Park.

Station Park has a hotel, conference center, activities and restaurants all in easy walking distance of each other--and it can be reached on a train from the airport with no need to rent a car or arrange other transportation.  

As always, our conference will be a wonderful time to connect with and learn from other BBS families, hear from leading experts about cutting edge research on BBS, and ask questions of doctors and specialists who have experience treating lots of people with BBS. We'll also have the chance to hear directly from leaders of Rhythm Pharmaceuticals about the first trial of a treatment for BBS-related hunger management and weight control. And we'll have plenty of sessions for BBS families to talk to each other.

Confirmed Speakers:
Dr. Robert Haws, BBS Center of Excellence, Marshfield Clinic
Dr. Hema Murali, BBS Center of Excellence, Marshfield Clinic
Dr. Fred Fioderek, Rhythm Pharmaceuticals
And many more to come!

Don't forget our famous "family reunion" banquet and a family activity on Saturday night!

We'll be posting updates about the conference here and an agenda when it's ready. In the meantime, you can help us shape the agenda by filling out this survey on what topics you would be most interested in (or review the agendas for our past conferences below).


See 2016 conference agenda

See Connect 2015 conference agenda