Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

BBSFA Connect 2015 Online

September 26, 2015

We are very excited to offer, for the first time ever, the opportunity for members of the BBS community who cannot attend our conference in person to listen in and participate in conference sessions.

Even better, because of the generosity of the BBS Center of Excellence at Marshfield Clinic, we are able to offer this option for free. However, because of the potentially sensitive information that will be discussed in various sessions, you must register if you want to participate. 

Registrants will be invited to a private Facebook group where they will be able to access dial-in numbers, chat with other participants, and post questions.

Morning sessions will feature doctors from the BBS Center of Excellence and a presentation from Dr. Nico Katsanis from Duke University. Afternoon sessions will be co-led by a member of the BBSFA and staff from Marshfield Clinic and will focus on discussions between BBS families on the most important issues in daily life. There will be conversations on topics like Transitioning to Adulthood, BBS and the Teen Years, Newly Diagnosed, etc. -- all chosen by conference attendees. 

For a detailed agenda, click here. 

For questions about Connect 2015 Online, contact us: bill.alms@bardetbiedl.org

While participation is free, providing audio conferencing services is quite expensive. Please donate to the BBS Center of Excellence at Marshfield Clinic to help defray these costs.

To register for Connect 2015 Online, please fill out the form below:

Name *
Name
Address *
Address
Phone
Phone
CRIBBS is the online BBS registry.
 

*Looking to register to be at the conference in-person?
 Please visit this page.