Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

BBSFA Connect 2015

September 26, 2015
Marshfield Clinic

BBSFA Connect 2015 is focused on helping BBS families connect with and learn from each other in addition to having the chance to hear directly from medical professionals who treat BBS patients.

Morning sessions will feature doctors from the BBS Center of Excellence and a presentation from Dr. Nico Katsanis from Duke University. Afternoon sessions will be co-led by a member of the BBSFA and staff from Marshfield Clinic and will focus on discussions between BBS families on the most important issues in daily life. There will be conversations on topics like Transitioning to Adulthood, BBS and the Teen Years, Newly Diagnosed, etc. -- all chosen by conference attendees. 

We can't wait to see you!

For information about travel arrangements, please contact Mary Morris at

For a detailed agenda, click here. 

Register for BBSFA Connect 2015
from 20.00
Adult or Youth:

*Can't make it in person? Register for Connect 2015 Online

Please consider a donation to the Bardet Beidl Syndrome Fund.