Bardet Biedl Syndrome Family Association

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.


*All donations received from this page will be in honor of Nathanael Ogden.*

Donate Here

Donations will support research into treatment and care for people affected by BBS as well as education and outreach to families, physicians, and educators. Our first major project is the launch of a clinical registry for BBS, a vital foundation for accelerating the pace of BBS research.