Cart
0
Home
What is BBS?
About Us
Resources
Get Involved
News
Store
Donate
Back
What is BBS?
BBS Basics
BBS Research
Clinical Practice
Back
Our Organization
Our Story
Our Impact
Our People
Back
Family Resources
Family Checklist
FAQs
CRIBBS
BBS Success Stories
Stay Connected
BBS Foundation YouTube Channel
Back
How You Can Get Involved
2025 Regional Gatherings
Birdies for BBS
Events
Fundraisers
Donate
Cart
0
Home
What is BBS?
What is BBS?
BBS Basics
BBS Research
Clinical Practice
About Us
Our Organization
Our Story
Our Impact
Our People
Resources
Family Resources
Family Checklist
FAQs
CRIBBS
BBS Success Stories
Stay Connected
BBS Foundation YouTube Channel
Get Involved
How You Can Get Involved
2025 Regional Gatherings
Birdies for BBS
Events
Fundraisers
Donate
News
Store
Connecting families and sharing information on research, therapies, and care for Bardet Biedl Syndrome
Donate
2022 Conference Registration
Location
Please select...
Charlotte, NC
Chicago, IL
Dallas, TX
Philadelphia, PA
Number of Attendees
Please select...
1
2
3
4
5
6
First Name
Last Name
Email
Mobile Phone
Mailing Street
Mailing City
Mailing State/Province
Mailing Zip/Postal Code
Mailing Country
Individual Associated with BBS
Please select...
Myself
N/A
My Child
Other family member
Non-family
Name of Individual Associated with BBS
Age of Individual Associated with BBS
BBS Gene
Please select...
BBS1
BBS2
BBS3
BBS4
BBS5
BBS6
BBS7
BBS8
BBS9
BBS10
BBS11
BBS12
Other
N/A
OPTIONAL - Help us build communities so we can connect others like you!
Sex of Individual Associated with BBS
Please select...
Male
Female
Major Medical Issues
Current Level of Vision
Please select...
No significant vision loss
Significant vision loss
Legally blind
Blind
If 18+ are they Independent?
Please select...
Yes
No
Please elaborate on the level of independence
Medical specialists the person sees regularly.
How big of an issue is appetite or weight management?
Please select...
Not an issue
Controlled
Controlled but problematic
Uncontrolled
Very serious concerns
If the person is in school, what support do they have?
Robot Test (Required)
What is the 3 letter acroynm for Bardet Biedl Syndrome?