The Foundation Fighting Blindness is thrilled to announce a groundbreaking national partnership with Alma to enhance mental health support.
Read More
Rhythm Pharmaceuticals reported top-line results from its pivotal Phase III clinical trial evaluating setmelanotide for the treatment of insatiable hunger and severe obesity in individuals with Bardet-Biedl syndrome (BBS).
Read More
A webinar with Eastern with Rhythm Pharmaceuticals to discuss the Phase II setmelanotide trial for weight loss in BBS.
Read More
It's a weekend of good news, and probably bad news.
Read More
Dr. Max Nachury is a leading researcher on BBS proteins.
Read More
Literature describing Bardet-Biedl Syndrome (BBS) indicates that speech disorders are considered secondary diagnostic features of BBS.
Read More
The first trial for a gene therapy treatment for a retinal degeneration was focused on a disease called Leber Congenital Amaurosis or LCA.
Read More
Giving Tuesday, Amazon Smile and BBS Bracelets.
Read More
The BBS Family Association has partnered with the Marshfield Clinic to apply for a grant to study weight management in people affected by BBS.
Read More
CRIBBS, the BBS clinical registry is off to a flying start.
Read More
We’ve launched a BBS Fund to support the new BBS Clinical Registry and BBS research and treatment.
Read More
A huge breakthrough for developing gene therapies for syndromes like Bardet Biedl.
Read More
An enterprising young woman who created a registry for the rare form of cancer that she suffered.
Read More
Our mission: Improving the lives of all people affected by BBS.
Read More
The Bardet Biedl Syndrome Foundation is now an officially incorporated non-profit in the State of Delaware.
Read More
Over the last ten years research on the genetics of BBS has progressed by leaps and bounds.
Read More
A new technology holds promise for rapidly accelerating progress on gene therapy.
Read More
Family travels to the Marshfield Clinic for the first Bardet Biedl Syndrome (BBS) Center of Excellence.
Read More
A letter to BBS families from Dr. Bob Haws, director of the BBS Center of Excellence at the Marshfield Clinic.
Read More
Surprising things about protecting vision.
Read More