About

The Bardet Biedl Syndrome Foundation is a registered 501(c)3 non-profit agency that connects families and shares information on research, treatment and therapies for Bardet Biedl Syndrome (BBS).

990-EZ

• FY2019

• FY2020

• FY2021

Board

Timothy Ogden

President

Alex Ogeka

Vice President

NATE ARNESEN

Treasurer

For more information and to get involved, please contact:

Alexis Jones

Project Manager

The Bardet Biedl Syndrome Foundation

PO Box 4063, Bethlehem, PA 18018