Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

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 Fall Fundraisers

October 13: The Rocky Ride, Exton PA

October 18: Bring Light to BBS, Atlanta GA

 

 

 The 2018 BBS Family Association Conference: the largest gathering of people affected by BBS in history!

The 2018 BBS Family Association Conference: the largest gathering of people affected by BBS in history!