Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

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 Upcoming Webinar: Rhythm Pharmaceuticals

The BBS Foundation is hosting a webinar this Thursday night at 8pm Eastern with Rhythm Pharmaceuticals to discuss the Phase II setmelanotide trial for weight loss in BBS patients and plans for the Phase III trial. This is the same presentation that was given at the 2018 Conference with some updated information.

To participate, register at this link: https://zoom.us/s/121285955

We are enforcing registration because this is a sensitive subject and we want to make sure we know who is participating and people can ask candid questions. If you have any problems registering, please email payments@bardetbiedl.org.

 

 

 The 2018 BBS Family Association Conference: the largest gathering of people affected by BBS in history!

The 2018 BBS Family Association Conference: the largest gathering of people affected by BBS in history!